Amanda Gryce, 24, suffers from Persistent Genital Arousal Disorder which has blighted her life for more than a decade.
A young woman has told how her life has been blighted by a rare
condition which causes her to orgasm uncontrollably up to 50 times a
day.
Once at the edge of despair, Amanda is now turning her life around after finding love - and much needed medical treatment.
However, under doctors’ orders Amanda and boyfriend Stuart Triplett, 22, must abstain from sexual contact.
Amanda said: “The condition is called Persistent Genital Arousal Disorder and it’s something that I’ve been living with since I was about 6. Different kind of things that can trigger my PGAD are vibrations, riding in cars and riding with a loud bass. It can happen anywhere and sometimes I’ll have five back to back. It’s not pleasurable - it has become like torture.”
Seven months ago Amanda met restaurant worker Stuart on a dating website and fell in love.
And despite previously having sex to cope when her symptom were bad, she now has to stay celibate.
She said: “It was difficult at first to come out about my disorder to Stuart.
I wasn’t sure when was the right time or how he was going to react.
But he’s so supportive, he completely understands and he is just my rock.
Stuart's
really been holding me back as far as the intimacy goes - he actually
has to remind me we’re not allowed to do anything.”
For years Amanda suffered in silence, too ashamed to tell friends or even family.
She said: "I can have 50 orgasms in one day and five or ten within an hour of each other.
It happens when I'm with my friends or out in public and it's very embarrassing.
It kills me inside. I just have to put on a smile and pretend that nothing's wrong."
And she battled doctors who didn’t understand PGAD or how to treat it.
She said: “Since last year I’ve been on a quest to find out more about this condition.
It’s been one disappointment after another thanks to the reluctance of some doctors to see this as a valid condition.”
But after making contact with pelvic pain expert Dr Robert Echenberg, Amanda hopes she has found a way to control her orgasms.
Amanda said: “After
seeing Dr Echenberg I found there are things which can reduce the
intensity of the orgasms - even though they are still constant.
I take medication to numb the areas and do exercise to try to take me mind of it.
Taking control over the disorder rather then it controlling me is a dream come true.”
Recently
Amanda visited physical therapist Gina Parsonis in Clearwater, Florida,
who examined how her body reacts to the condition.
Now Amanda and Stuart hope to move in together and plan their future together.
READ MORE: http://news.naij.com/64128.html
Stuart said: “I suppose you could say it was love at first sight with Amanda.
Dealing with her symptoms at first was kind of a challenge because I didn’t quite know how to approach it the right way.
As
far as the sex ban goes, it was kind of hard to cope with but then I
realised that it’s important to her health that she doesn’t do this so
I’ve been able to abstain as well as her.
I’ll continue to do whatever I can to support her."
Amanda added: “This
past year has been amazing. Meeting Stuart and Dr Echenberg, I finally
feel like I'm going to have a more normal life - and eventually a
positive sex life."
READ MORE: http://news.naij.com/64128.html
READ MORE: http://news.naij.com/64128.html
READ MORE: http://news.naij.com/64128.html
READ MORE: http://news.naij.com/64128.html
READ MORE: http://news.naij.com/64128.html
READ MORE: http://news.naij.com/64128.html
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1 comment:
Hmmm...na who I go ask?
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